Jemma suffers and she doesn’t even know. I know. I cry. I pray.

Jemma ToBeThode

This post comes after another very long night of no sleep.  Bear with me for a few... You wouldn't know from looking at that sweet baby above what troubles she has. You wouldn't know that she has lungs similar to that of an aged person. You wouldn't know the fear and anxiety that troubles her on a daily basis. You wouldn't know that she struggles to breathe some days. How could you? She looks … [Read more...]

Quick (but amazing) update on Jemma #PrayersForJemma

Jemma extubated

The past few days have truly been amazing.  I can say that I am truly surprised, as are most of those that have cared for Jemma, how well she has done since being moved to the conventional ventilator.  I mentioned in my last update that on Monday, the 21st of January, she was moved to the conventional ventilator.  She continued to do well and was weaned each day.  On Thursday, the 24th of January, … [Read more...]

My little fighter keeps on fighting #PrayersforJemma

kids

Hanging out with my big kids.  It is so hard being away from them but they are doing great with my mom and dad.  I am so blessed to have them in my life to take care of my babies for us. Wow, it has been a whirlwind of activity and change the past few days.  I left off with weaning Jemma off the oscillator vent.  Well they decided to make the jump early (were planning by Wednesday) Monday morning … [Read more...]

My worst nightmare

Jemma in ER

It has been some time since I have been able to get here to the blog.  I know that isn't completely new but this time I have a real, and horrible, reason.  You see everything in my life changed on January 1st.  Jemma was coughing a little bit on the 31st of December and I slept in a chair with her that night.  On the 1st, she was still coughing.  When I pulled her into my lap for a nap, I heard … [Read more...]