This post comes after another very long night of no sleep. Bear with me for a few... You wouldn't know from looking at that sweet baby above what troubles she has. You wouldn't know that she has lungs similar to that of an aged person. You wouldn't know the fear and anxiety that troubles her on a daily basis. You wouldn't know that she struggles to breathe some days. How could you? She looks … [Read more...]
Quick (but amazing) update on Jemma #PrayersForJemma
The past few days have truly been amazing. I can say that I am truly surprised, as are most of those that have cared for Jemma, how well she has done since being moved to the conventional ventilator. I mentioned in my last update that on Monday, the 21st of January, she was moved to the conventional ventilator. She continued to do well and was weaned each day. On Thursday, the 24th of January, … [Read more...]
The continued nightmare
One thing I forgot to mention in my last post was one thing that set me off when we were in APC getting ready for the procedure. They wanted to put dilating drops in her eyes and check her eyes. I was adamant that I did not want her to feel those drops. I have had my eyes dilated and it doesn't feel good. I did not want her to have to deal with that because I could not explain it to her. I … [Read more...]
