Quick (but amazing) update on Jemma #PrayersForJemma

Jemma extubated

The past few days have truly been amazing.  I can say that I am truly surprised, as are most of those that have cared for Jemma, how well she has done since being moved to the conventional ventilator.  I mentioned in my last update that on Monday, the 21st of January, she was moved to the conventional ventilator.  She continued to do well and was weaned each day.  On Thursday, the 24th of January, … [Read more...]

My little fighter keeps on fighting #PrayersforJemma


Hanging out with my big kids.  It is so hard being away from them but they are doing great with my mom and dad.  I am so blessed to have them in my life to take care of my babies for us. Wow, it has been a whirlwind of activity and change the past few days.  I left off with weaning Jemma off the oscillator vent.  Well they decided to make the jump early (were planning by Wednesday) Monday morning … [Read more...]

Touch and go… and then go some more!

Jemma Hair fixed

Jemma with her hair fixed like her momma got done I left the hospital yesterday for a few hours.  A friend of mine from high school set it up for me to get a complimentary hair cut at a local beauty school.  I hesitated but asked the nurse straight out if Jemma was good for me to leave and she said she was and to go.  So, I did.  When I got back, Jemma had the pink barrette in her hair and her … [Read more...]

A small hope from Jemma #PrayersForJemma

Jemma ToBeThode

This is what I have seen every day for the past week.  One week ago today my baby went for a procedure and came back to me like this... my heart hurts. It has been a week since I have seen the beautiful smile of my precious baby girl.  A week since I heard her cry.  A week since she said "mama" or "baba".  Her limited vocabulary grew as we have been here in the hospital.  Prior to her PICU stay, … [Read more...]

The continued nightmare

Jemma Thode

One thing I forgot to mention in my last post was one thing that set me off when we were in APC getting ready for the procedure.  They wanted to put dilating drops in her eyes and check her eyes.  I was adamant that I did not want her to feel those drops.  I have had my eyes dilated and it doesn't feel good.  I did not want her to have to deal with that because I could not explain it to her.  I … [Read more...]