My worst nightmare

by Stefany on January 16, 2013

It has been some time since I have been able to get here to the blog.  I know that isn’t completely new but this time I have a real, and horrible, reason.  You see everything in my life changed on January 1st.  Jemma was coughing a little bit on the 31st of December and I slept in a chair with her that night.  On the 1st, she was still coughing.  When I pulled her into my lap for a nap, I heard her breathing and she was struggling while at rest.  I brought her to the ER.  She was diagnosed with Croup and, after 3 unsuccessful breathing treatments and a dose of steroids, we were transported via ambulance to Children’s Hospital.  On the way there, we found out she tested positive for RSV.  I thought that was the worst day of my life.

Jemma in ER

We were waiting in the ER…

We were directly admitted to the Pediatric Intensive Care Unit (PICU).  She slept on me all night and did well.  Her pediatrician called and they told her she was doing okay and would be transferred to the floor.  That is exactly what happened.  We went to the pulmonary floor on the 2nd of January.  She was doing okay and her pediatrician was even told that she may be going home the next few days.  We were given a large bed so I could sleep with and hold Jemma.

Mommy and Jemma resting

I have never left her side. We slept together even.

 Things got worse though.  Jemma was diagnosed with Pneumonia.  They stopped her steroid and she rebounded within 6 hours.  She was placed on antibiotics (Ampicillin) for that.  She restarted her Dexamethasone (steroid) and titrated it down over several days.She kept spiking temperatures so they did a blood culture.  The culture came back positive for Staph Aureus.  A little less than a day later, we found out that staph was MRSA.  Antibiotics were changed to Vancomycin.  Jemma had a reaction called Redman’s Syndrome (not sure if I spelled that right) so she was placed on Benadryl prior to each infusion.  They ranged from every 4 to 6 hours depending on her blood levels (called a trough). Jemma continued to get worse.  Her blood cultures always came back at 17-19 hours.  It just seemed that no matter what they were doing, it wasn’t helping.  Respiratory came and did percussions, they added other medications to her regimen (first Linezolid for a day, Gentamycin for a few, then Rifampin when it was all said and done).  Jemma was just not getting better.

Jemma and Mommy

She had ups and downs. She loved hanging with mommy though.

 She really had days where it looked like she was getting better and then our world would fall out around us again.

Jemma 1/7

A good day where she was “reading” her menu.

She had a chest xray which showed more pneumonia on the 8th of January.   I kept telling them that she was in pain.  She appeared to me to be having some stomach problems.  After a day of these complaints (so on Wednesday the 9th), the ID (Infectious Disease) team decided to do a chest xray (to check for irritation) and a belly ultrasound.   They came back later telling me that she had a pneumothorax.  They added oxygen (which at this time had been on then off) to see if they could reinflate the lung.  Six hours after the first xray, she had another.  I was waiting and scared because we knew if it weren’t better, she would need a chest tube.  A doc from radiology came into the room and stated bluntly that she was going to get a chest tube at 5:30pm.  Nothing else was said to brace us for that news… I wailed.  This was what I thought was the worst day of my life.  I handed my baby over to strangers and she got her chest tube.  She did great and was back up to our room quickly because they said “she doesn’t like us”.  She just wanted to get back to her mommy.

1.10 Jemma

The day before our lives changed forever. All she wanted was her baba.

 The Rifampin  was added about this time due to the lack of changes with her blood cultures.  It made her miserable with skin issues so they stretched it over 3 hours but she was just not happy.  I had to hold her for 3 hours while she whined and cried.   She was uncomfortable from the chest tube and I finally was able to get them to give her Oxycodone for the pain.  It was raised and then switched to morphine to help control the pain and reaction effects. On Friday of last week, the 11th, we brought Jemma down to the APC for a CT scan.  They wanted to make sure she didn’t have a pocket of staph somewhere that was feeding this infection.  An anesthesiologist came into the room and blurted out that she would be intubated.  I was terrified and I lost it.  I was yelling at them and crying.  That was not part of the plan!!!  I knew that it was a bad thing for Jemma and that she would end up on a ventilator, at least for a while.  I was so upset but they finally just said they were doing it.  I laid my baby down on the bed and walked away.  I was nearly hysterical.

A short time later, we received a page telling us that we needed to go back to APC.  I saw one of her ID doctors standing there and she told me “Jemma is okay but I need to tell you what happened”.  My heart sunk.  She put her hand on my back and led me to another room.  I remember telling her that she was scaring me and all she would say is that Jemma is okay.  We walked into a room that was for procedures and there was a bunch of chairs in a semi-circle.  I nearly passed out… told her to just tell me what happened because I was scared… I was so scared.  I knew it was a bad, bad thing to have this set up.  Two ID doctors and the attending from the floor were there with Mike and I.  They told us that when they intubated Jemma, her blood pressure dropped.  They had to give her 3 doses of epi before her blood pressure would stabilize.  She had a line inserted into her thigh and was on a continuous epi drip to keep her blood pressure up.  Basically, my baby coded but they didn’t have to do chest compressions.  They decided not to do the test because she wasn’t stable enough.  She was brought up to ICU.  We were brought to a conference room and told to wait.

This was, without a doubt, the worst day of my life.  The absolute worst.

After an hour, someone came to talk to us.  Jemma was in critical condition.  She had a double pneumothorax and had to have 2 more chest tubes placed (one on each side).  She was still having problems with her blood pressure.  Her oxygen sats were not good.  He told us to wait.  So we waited, and waited some more.  A social worker came in as did the chaplain.  I just wanted to see my baby.  Finally, the doctor came back and told us that she is on a ventilator.  They couldn’t put her on a traditional ventilator because it was too much pressure.  She was on an oscillator ventilator (and still is).  It doesn’t look like she is breathing.  There is no up and down of her chest.   We were led back to her room.  Nothing could have prepared me for what I saw.

My worst nightmare

My worst nightmare…

I have worked in an ICU and I was still shocked.  Someone grabbed me because I started to fall down.  I thought I was going to black out.  I just have no words really.   We found out that she was Vancomycin Resisitant as well that day.  Her WBC  count was 89000.  This was a huge development because that means everything they had been giving her up to this point was not working.  They started Jemma on Daptomycin late Friday/Saturday morning and she was back on Linezolid.

I am always at the hospital.  I never leave.  I visit Jemma several times a day (about twice an hour) but don’t stay long.  It is just too hard to be in there with her like this.  My baby is there but you wouldn’t know by just looking at her.  The nurses tell me her blood pressure and pulse go up when she hears me.  My God, I love her so much it hurts.

I visit her often.  I pray, cry, sing and talk to her.

I visit her often. I pray, cry, sing and talk to her.

Since that day, last Friday, things have been changing.  Her blood cultures have all been negative since the 11th.  Her WBC went from 89k to 47k to 41k, to 35k for 2 days.  This morning I went in and she is at 28.8.  She is on her way down!!!!  They discontinued blood cultures due to the 3 days of negatives.   So we wait.  She is currently on the oscillator ventilator.  They are very slowly trying to wean her down.  Very slowly because she still has an air leak on the right side (hole in lung that needs to seal).  She is paralyzed from medication, completely sedated.

Friday morning Jemma was talking to me and now she is not moving, not breathing on her own, and completely sedated.

I have a few other things to share about what has happened.  If you follow me on Facebook, you may know already.  But, I need to stop this post here as I have tears streaming down my face.  I will share more as the days go on and try to keep everyone updated.  I have things to share about the BEST day of my life, our insurance woes, my job woes, Mike’s job woes, and more.

I am very humbled by the love and generosity of people.  A wonderful group of like-minded friends (we are friends from an online book club) have set up a benefit for Jemma.  You can see Jemma’s benefit here.  They have gathered a lot of great book and reader prizes for auction.  It is just amazing.  I have been in the hospital with Jemma for 15 days, no longer receiving a paycheck, and we are spending a small fortune on food and gas.  Thankfully my parents have my older kids and I am finally able to start seeing them again without breaking down.  I miss them terribly!

Johnny and Joley

During one of their earlier visits… Johnny and Joley

In the meantime, please pray for my baby girl.  She needs the prayers.  She has a long road ahead of her and it is a very slow process.  I don’t care about the slow… I just want her to get better.

Here is the progression for those that didn’t follow my long-winded post…  croup/rsv –>  pneumonia –>  staph infection –>  MRSA  –>  Pneumothorax  –>  Intubation –>  Double pneumothorax/blood pressure problems, ventilation –>  VRSA (very rare, by the way)…. and now we wait.

Please share this post with the buttons above if you don’t mind.  The more people that know what is going on with Jemma, the more prayers, good thoughts, or healthy vibes that will be sent her way.  Thank you!

See the whole progression for Jemma here.

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{ 289 comments… read them below or add one }

Christina Oddy January 16, 2013 at 12:16 pm

This is heartbreaking to hear how this escalated out of control. I pray that she continues to progress. I’m so sorry you have to go through this. May God be with you.

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Hayley Young January 18, 2013 at 6:42 pm

Thinking of you and jemma I am crying reading it please keep us posted. Praying for you xx

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Heather @OurKidsMom January 16, 2013 at 12:31 pm

I am so glad they finally figured out what was wrong! I, too, have seen my baby on a ventilator and totally unconscious… there are no words. Please keep us updated. You are in our thoughts.

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Sarah VM January 16, 2013 at 1:03 pm

I am so sorry to hear that your little girl has been so sick. I’m praying for her and for you. Stay strong for your baby.

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Stefany January 17, 2013 at 11:10 pm

I’m trying Sarah! Thanks for the prayers.

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Pat Bailey January 16, 2013 at 1:54 pm

I am praying for your little girl to get well soon…prayers for your whole family! Keep the faith. God Bless!

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Stefany January 17, 2013 at 11:10 pm

Thank you Pat.

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Jenn McCullar January 16, 2013 at 4:20 pm

Oh my so sad and heartbreaking, I’m praying for your little girl and your whole family. I truly feel for you.
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Stefany January 17, 2013 at 11:10 pm

Thanks Jenn.

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Kristine January 16, 2013 at 4:33 pm

Oh! My! This just took my breath away! I cannot imagine what you have been going through! I have said a prayer and will continue to pray. Please let me know if I can help in anyway. I could make a meal or watch your older kids or come and sit with you. Let me know what I can do.

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Stefany January 17, 2013 at 11:09 pm

Thanks Kristine. I may take you up on that sitting with me thing. It is hard to be here all day by myself sometimes.

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Sarita Lopez January 16, 2013 at 8:59 pm

I’m a new mom, and I can’t even begin to imagine what you and your family must be going through right now!! I literally had tears streaming down my face with this story. This is completely heartbreaking!! My prayers will most definitely be with you and your family. Most importantly, with your baby. God bless and may he keep her under his constant watch and care.

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Stefany January 17, 2013 at 11:09 pm

Thank you so much Sarita.

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Sherry Aikens ( January 16, 2013 at 9:18 pm

I am so sorry you are going with you and my prayers are with you. It really touched my heart and I want to make it all go away. My sister had a very similar situation with her son 11years ago. RSV chest tubes.. I felt like I was reading her story. Her son is now 14. I will pray for her speedy recover and your family in the time of need.
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Stefany January 17, 2013 at 11:09 pm

Thank you Sherry.

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debby pucci January 16, 2013 at 11:13 pm

My heart is hurting for you and your precious Jemma. I cannot believe all that has happened to her. Praying for her full recovery. Please know that I care. ((Hugs))

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Stefany January 17, 2013 at 11:08 pm

Thanks Debby. <3

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HilLesha January 17, 2013 at 5:52 am

My goodness! I’m so sorry to hear what you’re going through. I’ll definitely keep your precious daughter in my prayers. My 6 month old came down with RSV last month and it seem like she’d never get over it. So much sickness is going around….it’s scary!
:(
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Stefany January 17, 2013 at 11:08 pm

Thank you. I am glad to hear your daughter is finally getting better. We would be out of here if it were just the RSV. I wish it were now. :(

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Natalie January 17, 2013 at 5:59 am

I will pray you and your family

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Stefany January 17, 2013 at 11:07 pm

Thank you Natalie.

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Angie Vinez
Twitter:
January 17, 2013 at 6:10 am

Praying for your family right now.

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Stefany January 17, 2013 at 11:07 pm

Thank you Angie.

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LisaLisa January 17, 2013 at 6:47 am

I’m so sorry to hear this and I pray that God will continue to do what he do best HEAL HER!! Praying for you all….hugs to you my dear!

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Stefany January 17, 2013 at 11:07 pm

Thank you!

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Rachel C January 17, 2013 at 8:07 am

I will pray for peace and healing for all of you. I can’t imagine how hard it must be to see your baby in a situation like this.

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Stefany January 17, 2013 at 11:06 pm

Thanks Rachel.

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Karin January 17, 2013 at 8:33 am

am praying for you and your family

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Stefany January 17, 2013 at 11:06 pm

Thank you Karin.

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Teresa Gerdes January 17, 2013 at 8:58 am

Oh Steph, I am so sorry for the hell you have all been living through for the past 2 wks! Thoughts and prayers are w/ you and yours!!

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Stefany January 17, 2013 at 11:06 pm

Thank you Teresa.

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Katie Dolitsky January 17, 2013 at 9:05 am

I am so sorry to hear about Jemma! I can not even imagine what you and Mike (and the rest of your famliy) are going through! Please know that you are all in our thoughts and prayers each and every day!

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Stefany January 17, 2013 at 11:06 pm

Thanks Katie. I miss you girl.

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Jill Myrick January 17, 2013 at 11:38 am

Please know that your family is in my thoughts and prayers.
I pray that Jemma makes a quick recovery. And that God gives you the strength that you need.

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Stefany January 17, 2013 at 11:05 pm

Thank you Jill. Prayers are powerful and I appreciate them.

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Surso S. January 17, 2013 at 1:35 pm

your family will be in our prayers and thoughts

He gives strength to the weary and increases the power of the weak. Even youths grow tired and weary, and young men stumble and fall; but those who hope in the LORD will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint.
Isaiah 40:29-31

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Stefany January 17, 2013 at 11:05 pm

Thank you so much.

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Steve January 17, 2013 at 9:46 pm

Hi Stephany. I met your husband at work today. I promised to pray for Jemma and just wanted to share that with you. God is good.

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Stefany January 17, 2013 at 11:04 pm

Thank you so much for the prayers. They are very much appreciated.

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Wanda McHenry January 17, 2013 at 11:15 pm

Oh Stefany, I’m praying! Sweet baby, get better!

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Monica January 17, 2013 at 11:24 pm

You might remember me from Triberr. I got booted when I was away having my 3rd baby.. so I haven’t been able to keep up with everyone. I just now happened to read your post & I’m bawling my eyes out. I can’t imagine how stressful this has been for you. You & your family are definitely in my prayers!
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Kristi {at} Live and Love Out Loud January 17, 2013 at 11:28 pm

Still praying for you and sweet baby Jemma!
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Cayla January 17, 2013 at 11:37 pm

I’ve been following Kim and Jenn’s updates on Facebook. I’m so sorry that you all are going through this. Continued prayers for your sweet girl.

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Alyssa McVey
Twitter:
January 18, 2013 at 12:02 am

Oh Stefany, I am so sorry! There are no words. I can’t even imagine. I will blog about this and share the raffle with all of my followers. I will be praying for Jemma and for you along with your family. I sincerely hope that this is short-lived and that Jemma will be able to go home as soon as possible.
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Holly Trudeau January 18, 2013 at 12:14 am

I am so sorry you and your family are going through this, I was so choked up reading… My prayers are with you and hope she continues to get better each day!

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Darlene January 18, 2013 at 12:20 am

I am so sorry to hear of all you and your sweet baby have had to go through. The best thing is that you’ve never given up hope and though I know it is hard to see her like that, know that she can hear you. My mom was in a coma and on a ventilator and life support for 21 days and she told me of things she heard when she was in the coma-songs I sang, music I played, jokes I told her. I will keep you, your beautiful Jemma, and your family in my prayers.

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Sarah K. January 18, 2013 at 12:23 am

Praying for your sweet baby.

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Janine January 18, 2013 at 12:26 am

I know it is *so* hard to see our babies sick; mine had a fever of 101.8 , was diagnosed with a L-sided earache by his pediatrician today, and given Amoxicillin. He basically hasn’t eaten in two days ’cause he can’t keep anything down. Definitely *not* anywhere near what you are going through, but still *so*, *so* scary ’cause they’re too little to tell us what’s wrong. Take comfort in knowing that God is the ultimate controller and you have many, many people praying for you, your precious daughter, and your family.

Your Sister in Christ,
Janine

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April Blanton January 18, 2013 at 6:30 am

I pray that the lord touches this lil girl with his healing hands. I pray he gives her and her family comfort to get through this hard time. I believe prayer is powerful and the lord does make miracles happen. So I pray that everyone who can see this says a prayer for this sweet angel here on earth with us. May godbless her and the family.

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Crystal January 18, 2013 at 7:05 am

Prayers being sent to your family….

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Michelle January 18, 2013 at 7:07 am

Stefany, I can only half imagine the horror in your heart. Every possible positive vibe within my soul is being sent to you, your family and that beautiful little baby! I wish nothing but for you to see positive improvement with her health and FAST!!! Tons of {hugs} for all of you!

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Sharon
Twitter:
January 18, 2013 at 8:10 am

We are praying for your little one and for your family. Surround them all with Your love and protection, dear Lord, and heal this precious little one.

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Fer January 18, 2013 at 9:17 am

Praying for your sweet baby girl Stef!

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MommyJenna January 18, 2013 at 9:29 am

Oh Stefany, my heart aches. Please know we are all praying and I hope you feel the love from near and far. Keep fighting Jemma, you are a strong little girl and so many love you!
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Jen-Eighty MPH Mom January 18, 2013 at 9:56 am

I have been following on Facebook of course, and I keep waiting to hear more good news. I have been praying for her (and you) as so many have. I wish I could give you a great big hug – you are the strongest woman I know.

I can’t wait for the day when you get to bring your precious angel back home with you. That would be the best news I’ve heard in a long time.

HUGS – if you ever need someone to talk to, please let me know. I am an excellent listener.

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Tenille January 18, 2013 at 10:08 am

Shared on my FB page. Tears running down my face but feeling hopeful with the news of her doing a bit better. GO JEMMA!

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Lou Lange January 18, 2013 at 10:08 am

Tanya Gordon shared your story on Facebook. I feel your pain.

Prayers to and yours and your baby!

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Debra January 18, 2013 at 10:11 am
Henrietta January 18, 2013 at 10:11 am

Oh my goodness, I am so sorry your family is going through this. Keeping you all in our thoughts and prayers and praying for your little one to come home well again! Hugs!

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Shannon January 18, 2013 at 10:11 am

I came here through a link on Facebook. This is my first time here and I read your story and want you to know I am praying for your baby and family.

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Sheri January 18, 2013 at 10:17 am

I’m sending prayers and going to share now.
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Viv Sluys January 18, 2013 at 10:20 am

Praying for your baby and you and your family. I, too, have had a baby under all the tubes. My heart is aching for you and tears are falling. God is good and he loves children. Praying for a quick and complete recovery!!

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Not So Average Mama January 18, 2013 at 10:21 am

I do not know you, but my heart is aching for you! I know how scary it can be. Everyone is praying!!!
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Andrea January 18, 2013 at 10:22 am

I just heard about your family on Facebook. I am so so sorry for what you’re going through. I am praying for your sweet girl and your family. (((hugs)))
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laura January 18, 2013 at 10:24 am

So sorry..I cannot imagine what you are going through. My heart breaks seeing your pictures. Glad the infection seems to be finally going away.

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Mariah January 18, 2013 at 10:24 am

You and your family are in my prayers!
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Kayla January 18, 2013 at 10:32 am

As I read this I had to stop because I started to cry. I have 3 children and I get emotional when they just have a cold. I could not imagine going through what you are going through right now! I pray that she gets better!! I pray for you and your family!

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Cat Davis January 18, 2013 at 10:32 am

I can’t even begin to imagine how hard this must be for you and for your baby girl. Please know that I’m thinking of you both.
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Sarah Penner January 18, 2013 at 10:36 am

Father God, I pray for this beautiful little girl and her family. Lord I can’t imagine the heartbreak that Jemma’s family is feeling. We know Lord that you are the Great Physician. I pray Father that you would heal Jemma. Let her recover so quickly that there is no doubt in anyone’s mind that it was You. Surround her family with comfort and support. Raise up people to walk with them and thank-you that someone chose to share this so that we may all be silent prayer support. Lord, you love Jemma and you are with her. Bring healing Lord!
Amen

Your family will be in our prayers.
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Nolie
Twitter:
January 18, 2013 at 10:36 am

Thoughts and prayers are with Jemma. hUGS

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Nancy DeForge January 18, 2013 at 10:44 am

Prayers, prayers and more prayers for you, Jemma and your entire family. I’m sending your story to my sister in Alaska and she will put you in their prayer chain. These prayer warriors have helped me personally. May the Lord lift up your daughter and make her well! All my love to you, in Christ’s name! Nancy

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Robin Quick January 18, 2013 at 10:45 am

Oh Stefany Im sitting her with tears streaming down my face & my heart breaking for you & your family. 16 yrs ago when my son was 6 weeks old he had RSV & that was horrible to go through. At the age of 2 he had thrush & was extremely dehydrated & was in the hospital for over a week. Then again when he was 6 he was in the hospital for a week with an unknown virus that ravaged his little body & caused him to lose so much weight it was freighting. I can’t even begin to imagine going through the rest of what you’ve faced. I know how it is to have to hand your baby over to strangers & walk away in tears & full of paralyzing fear. Seeing your baby sick & knowing there’s nothing you can do to make it better is heart wrenching for a parent. So know that I will be praying for your precious little girl numerous times a day. Lean on God Stefany. Ask him for the strength to face each day & stay strong for Jemma. God be with you hun……….
Dear God, I ask your blessings upon this family. Place your healing hands upon Jemma, Lord. Heal her little body Lord & give her the strength to fight. God, I ask that you wrap Stefany & Mike in your embrace & fill them with strength & courage to get through this. Bring them peace. Heal their baby girl and reunite their family Lord. I ask these things in your name, Amen!

Robin Quick
Alabama

mnrquick at yahoo dot com

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Marcella Cook January 18, 2013 at 10:45 am

My oldest had RSV and I thought that was bad. Jemma seems to be a fighter and though the going may be slow, it will get better. I know having someone in the ICU is bad and I’m glad that they let you see her so often. My prayers are going out to you and I will add her to my church’s prayer list.
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Gina January 18, 2013 at 10:47 am

Who wouldn’t cry :( My heart dropped further as each paragraph was read. I have 3 kids & I can only say God Bless & I hope 4 the best!

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Randa
Twitter:
January 18, 2013 at 10:48 am

Oh Stefany,
My heart aches for you, things WILL get better and I cannot wait to read your next post telling us that she is on the mend.

My thoughts and prayers are with you and your family.
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Stefanie January 18, 2013 at 10:51 am

My thoughts and prayers are with you and your family. I pray that The Lord will surround your precious baby with His angels to keep her safe, make her better and assist the doctors in curing her. I hope and pray that she recovers and goes home with you soon. God bless you! Stay strong and know that we are all praying for you, your family and your little, beautiful daughter.
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Kristin January 18, 2013 at 11:09 am

How scary. I found this post through a facebook share and just wanted to let you know that you are in my thoughts and prayers.
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Peggy January 18, 2013 at 11:15 am

Saying ‘sorry’ doesn’t begin to tell you how my heart is aching for your family. I pray that Jemma fully recovers and never has another episode. I pray that people will read your blog and a prayer avalanche will follow, not only for your baby’s good health restored, but answers to your employment and money woes. Claim victory for yourself and your family. God has ‘got this’ and He is holding you in the palm of His mighty hand right now. You must believe that and continue to be faithful.

Hugs and prayers to you and yours.

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Lindsay January 18, 2013 at 11:23 am

I am praying hard for Jemma and your family during this nearly impossibly difficult time. May God give you peace and serenity knowing that He is in charge and will take care of your baby.

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Jennifer
Twitter:
January 18, 2013 at 11:26 am

Oh honey I am SO sorry. I am still trying to catch my breath from crying. I’m so glad they know what she is fighting and I’m praying she stays fighting. Oh hugs mama.
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Michele January 18, 2013 at 11:28 am

Hi, I saw this on FB via a friend and wanted to let you know that we will be praying for you guys. Our twins were 27 weekers and spent 9 long weeks in the NICU, so I can relate to being there all the time and the the money spent on gas and food and not being home, but just wanting- no needing- to be with your child. It’s hard. If you ever need to talk… Feel free to contact me through my blog or through email.

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melissa January 18, 2013 at 11:36 am

I saw this on FB and I am crying for you. I will keep you and your family so close in my thoughts. Words seem trivial right now. I look forward to that post you’ll write about the BEST day of your life when your baby came home completely healthy.
Much love to you, Jemma and the rest of your family.

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Amanda A January 18, 2013 at 11:41 am

I am sending all the prayers I can for your sweet girl to recover quickly. lots of love to you mommy.

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trisha January 18, 2013 at 11:49 am

Brought tears to my eyes. I will be praying for her, and your, strength.

trisha
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dawn January 18, 2013 at 11:49 am

Begging the Lord to heal her! OH Lord, have mercy on her. Heal her, please, Lord!!!! Amen. So sorry to hear what you are going through.

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Brandi January 18, 2013 at 11:50 am

Praying for your baby, Stephany. God is a Healer, and He can and will heal your sweet little girl.

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Liz January 18, 2013 at 11:50 am

You and your family are very much in my thoughts and prayers. Stay strong and try to take care of yourself as best you can.

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Pam January 18, 2013 at 11:51 am

Praying for your little girl. Stay strong!!
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maria January 18, 2013 at 11:53 am

My heart is breaking for you. I am praying here with my two kids and hope that your sweet baby girl will open her eyes and look at her loving mommy very soon. Loads of love to you and your family as you “wait” for Jemma. May the Lord hold and keep you safe and wrapped in his love.

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Melissa January 18, 2013 at 11:54 am

I’m crying with you. I am keeping all of you in my heart and in my thoughts.
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Courtney Velasquez January 18, 2013 at 11:55 am

I’m so sorry this is happening Stefany. I am praying really hard for your entire family.

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jennyonthespot January 18, 2013 at 11:56 am

Praying right now, and will continue… for Jemma, for you, for your kids… for your network there… My heart aches for you.
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Christina Gleason January 18, 2013 at 11:56 am

Oh no. Praying for you and your little girl. Know that we’re all here rooting for her!
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Mel Lockcuff
Twitter:
January 18, 2013 at 11:57 am

Stefany, I am so sorry you are going through this. Please know you, your family, and your precious baby girl are in my prayers and thoughts.
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Kristin Wheeler (Mama Luvs Books) January 18, 2013 at 11:57 am

Thoughts and prayers your way for your little girl and your family!!!
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Crystal
Twitter:
January 18, 2013 at 11:57 am

We are praying for Jemma and for the family during this tough time.
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paula January 18, 2013 at 11:58 am

I haven’t been to your blog in a long time. I apologize for that. Tons and tons of prayers coming for your little girl. Stay strong for her mama.

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Emilie January 18, 2013 at 11:59 am

My heart goes out to you and your family through this difficult time. :( As a mother, I can only imagine how heartbreaking it must be to see your baby so sick. Hoping your daughter is on the way to recovering very soon!
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Liza (Cira's Lyrics) January 18, 2013 at 12:01 pm

prayers for your sweet baby. lots of them. xo

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Jen January 18, 2013 at 12:04 pm

I cannot even begin to imagine. Like others, my heart hurts for you and I can barely see through the tears. Your beautiful baby is in my prayers.
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Desiree January 18, 2013 at 12:05 pm

I’m sitting here with tears in my eyes for you and Jemma. I will be keeping your family in my thoughts & prayers. If there is ANYTHING I can do please let me know.
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Alana Jo
Twitter:
January 18, 2013 at 12:09 pm

Steph, I am so sorry this is happening. I wish there was something I could say or do to ease your pain. Just know I am praying for Jemma. {{{hugs}}}

Alana Jo

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Tricia Nightowlmama January 18, 2013 at 12:09 pm

what a horrible ordeal for both you and her and your whole family. I cna’t help but cry with you. Stay strong she needs you all of your children need you Sending lots of prayers her way and hope for a quick and speedy recovery. {{{{Hugs}}}}
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Beth January 18, 2013 at 12:10 pm

Saying a prayer for your baby girl. I will keep her in my prayers that you will continue to see her heal!

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Kara January 18, 2013 at 12:11 pm

Prayers for your sweet baby! What a nightmare! I hope she continues to do better every day.
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April January 18, 2013 at 12:11 pm

I too am so sorry you are going through and will keep you & your precious baby in my prayers. I saw that you posted that you are no longer receiving a pay check. There is the FMLA (Family Medical Leave Act) and you should still receive your pay for at least 6 weeks. This works like short term disability. I know that it is not something that will make your baby better but hopefully will ease some of your financial burdens.

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Jenni Chiu
Twitter:
January 18, 2013 at 12:12 pm

I am sending you all the loving, strong, good vibes I can. I am so sorry your family is going through this. You are a strong mama bear. There are a lot of people pulling for your little girl and holding you all in our hearts.
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christine moody January 18, 2013 at 12:14 pm

praying. praying. praying. praying. praying. praying. praying. praying. praying. praying.

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Joan January 18, 2013 at 12:15 pm

I’ve been praying for Jemma and for your family. Today I put her on the prayer list my church circulates. We will all be praying for you.

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Hilary January 18, 2013 at 12:18 pm

My prayers are with Jemma & your family. I can’t begin to imagine the pain and sadness you’re feeling. (I have a 15 month old.) I pray that she comes out of this in good shape and everything ends up good.

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Jenn January 18, 2013 at 12:19 pm

My friend posted about you on Facebook. My prayers are with you! I cannot even imagine what you are going through. Keep strong!
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Barb @ FL Mom's Blog
Twitter:
January 18, 2013 at 12:19 pm

Wow, Stephany, you have been through alot with your little girl in the past month. As a Mom and a RN, I can relate and empathize with you. Our 14 year olf son had RSV when he was only 2 weeks old back around Christmas in 1998. His lungs filled up with fluid and ended up in the Peds floor On Christmas Eve. He had IV’s and IV antibiotics, and breathing treatments after I asked for them. It was overwhelming to say the least, as new parents. As the RN in me, can relate to all of the terms that you mentioned. I was already flipping out with the MRSA part, but when you mentioned VRSA, wow. You and your Jemma and the rest of your family are in my prayers! I’m praying for a safe and fast recovery! I can remember when you were posting and tweeting about her before she was born months ago! The Nurse in you is keeping on top of them being updated, and the
mom in you has the okay to cry and being with her! HUGS, Stephany!

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Andrea January 18, 2013 at 12:20 pm

Praying for your sweet little girl. xxooxxoo

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Leila January 18, 2013 at 12:20 pm

My sincerest thoughts and prayers for you, Jemma and your family! I am so happy to see that she is getting better, but I cannot imagine going through all of that. Prayers that she continues her path to recovery!
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Janel from NellieBellie January 18, 2013 at 12:20 pm

Lots of prayers and good wishes are being sent. I know it doesn’t help, doesn’t make today better but…just last month I was in and out of the hospital with my 18 month old nephew. He had coded and was in ICU on breathing tubes, feeding tubes, paralyzed from meds, the whole thing. The scene was just like what you show. We were prepared for the worst. I was just trying to keep my brother and his wife from collapsing every time the dr’s called them back in for an emergency. Time and again, day after day it went like that for 7 days. And then…he turned on the 8th out of 10 days. And now that little boy is at home doing well. He is our miracle. And I know that your little girl is going to be a miracle. She can feel your love, she can hear your voice…hang in there!
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Another Mom January 18, 2013 at 12:23 pm

If the MRSA is still a factor, please look into and ask about colloidal silver.
Praying!

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Becca January 18, 2013 at 12:24 pm

Praying for your family and your sweet baby girl.
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Vickie Evans January 18, 2013 at 12:24 pm

Very sorry for you and your family to have to live this nightmare!! Sending hugs and prayers for all!!

May God bless you with some good very soon!!

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Rachel January 18, 2013 at 12:27 pm

Praying for healing for your sweet Jemma. Sending love and prayers from Washington.
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Jackie Hennessey January 18, 2013 at 12:28 pm

You truly are an amazing mother, staying by your daughter’s side every second of the way through this unbelievable series of events. I’m so sorry your daughter has to go through all of this, but I can tell she is strong. I’m praying for you and your beautiful little girl. She is a strong, sweet girl – a miracle – God bless her.

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Katy W January 18, 2013 at 12:32 pm

This is so devastating. I’m bawling reading this and my 2 year old just keeps pointing at her picture saying, “Ouch mommy..” We will pray continuously for your sweet girl.

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Karen January 18, 2013 at 12:36 pm

i completely understand what you are going through. Something similar to this happened to my 4 year old grandson last year in February. It was so very hard to look at him, so tiny, with all the tubes and things attached to him. He was in ICU for 16 days. I will pray for you and your daughter for sure.
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Michele C. January 18, 2013 at 12:37 pm

I can’t begin to tell you how many thoughts and prayers I am sending to you and to Jemma. I am so, so sorry that she, and you, are going through this. I’m sending healthy, strong thoughts to your beautiful baby girl, and surrounding you in love.
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Nicole Feliciano
Twitter:
January 18, 2013 at 12:45 pm

Saying a prayer right this moment. I read this with my 5yo by my side. I am holding her hand and sending blessings for your precious child.
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Lena - January 18, 2013 at 12:49 pm

The best of luck to your family and huge hug
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D Schmidt January 18, 2013 at 12:49 pm

I have no words but I am thinking of you and praying.

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Jenn {MommyB Knows Best}
Twitter:
January 18, 2013 at 12:55 pm

I don’t know where to begin and don’t know how you feel, I can only imagine the hurt you are going through. You don’t know me but I am praying for you, for your family, and for Jemma, for the doctors, and staff at the hospital. I am praying.

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Kim ~ Craftymamaof4 January 18, 2013 at 12:58 pm

Oh Stefany, I am keeping you and your family in my prayers. Seeing your poor baby girl in that NICU bed brought back memories of a horrible experience we had with my cousin’s baby several years ago, I feel your pain and I cry with you. Stay strong.
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Alison January 18, 2013 at 12:58 pm

Parting for your sweet baby!!!!!

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@stblissout January 18, 2013 at 12:59 pm

There are no words but know there are many prayers. )))))

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Tammy January 18, 2013 at 1:05 pm

Wow, how scary! I can’t even imagine it! Praying for your baby girl.

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Christina January 18, 2013 at 1:08 pm

I am praying for little Jemma!! The power of prayer is very strong so please don’t give up hope. My father was very ill with MRSA in December but is now in a rehab facility getting physical therapy. It is a long and scary process but healing IS possible!

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Nichol January 18, 2013 at 1:09 pm

I am praying, praying so hard for Jemma, your entire family. I know how hard it is to see your baby hooked up to all that stuff. Stay as strong as you can, she needs it. Big hugs, lots of thoughts.
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joanna
Twitter:
January 18, 2013 at 1:10 pm

My heart absolutely breaks for you and your family! I am praying and asking others to do the same! God bless you all & I pray she keeps getting better!

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Brett January 18, 2013 at 1:27 pm

Sending love to you and Jemma and your family. I will be praying for her steady recovery, and for some relief for your family. <3
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Melissa Garcia January 18, 2013 at 1:27 pm

Stefany, I am so deeply sorry for what you are going through. My son had RSV at 4months and my we were told my daughter had a 50% chance of living when she was born. I know somewhat what you are going through and it just breaks my heart. I am adding you to my prayer list and I pray that God will give you peace and strength through this time. Your CB family is also praying for you as well!

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Carolyn January 18, 2013 at 1:32 pm

My heart goes out to your precious Jemma and your family. I am praying for all of you. I have been in your shoes before. My grandson, Taylor was I lb. 6 oz. at birth. He never left the NICU. Tubes kept him alive. Lungs gave out. He became an Angel in Heaven at 5 1/2 weeks. Good luck.

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Melanie January 18, 2013 at 1:32 pm

How horrifying! Thoughts and prayers are with you and your baby girl!
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Kim
Twitter:
January 18, 2013 at 1:39 pm

sending prayers to your baby girl and your family. HUGS.
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Jennifer January 18, 2013 at 1:53 pm

I cannot imagine the hell you are going through :( It’s so heartbreaking and I pray for some understanding and answers soon. I hope Jemma gets 100% asap.

I am really scared though because my 2 1/2 yr old has a cough. You took her in only the next day after coughing so I’m curious as to why? You knew it wasn’t because of a cold or the flu coming on? My daughter sometimes has a coughing fit that wakes her from sleeping and she cries because it hurts she says. But we have just been giving her cough medicine. It’s been going on for 2 weeks now but the cough isn’t going away.
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Daisy January 18, 2013 at 2:03 pm

Dear little Jemma, we are praying for your recovery and strenght for your family <3

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MaryAnn January 18, 2013 at 2:16 pm

My heart is breaking for you & your sweet little Jemma. My daughter too was diagnosed with RSV when she was 2 weeks of age & I can understand the pain as well as confusion you are experiencing. I pray that God answers all our prayers & that your little girls is home playing & laughing with everyone as soon as possible.
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Lorrie E
Twitter:
January 18, 2013 at 2:24 pm

My heart is broken for you, my son was hospitalized at her age for 3 days, the exhaustion and depression and worry I had for that short amount of time was excruciating, i can not imagine how you are holding up, i just want to hug you and help you in some way. i will pray for you and your family and will share your story. stay strong mama, for your precious family!
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Julie January 18, 2013 at 2:26 pm

I am so sorry this is happening to your precious baby I just cannot imagine..Babies are so precious and they are also very resilient be strong and talk to her .. Please keep us updated.

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Shirley January 18, 2013 at 2:39 pm

praying for Jemma and for you and your family – I can’t imagine how I would be if something like this ever happened to my daughter – stay strong and positive

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Pam Thurston January 18, 2013 at 2:50 pm

Dear Stefany and family
I was Pedi nurse years ago–I have been in your shoes–not as bad as yours but know how you feel… I am praying for your daughter and glad that there is now improvement in her condition…. So hoping that she will be home with you soon… My son was 2 when he respitory arrested in the hospital er–fortunately– he was on a vent and sedated for a few days.. when they decided he was well enough and the pulled the vent– he said in a soft voice Mom I can cry again.. please know we are all with you–and praying for the best for all of you Pam Thurston

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Larisa Kudisheva
Twitter:
January 18, 2013 at 3:02 pm

Stay strong for Jemma she needs you now more then ever.

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Daura January 18, 2013 at 3:08 pm

My prayers go out to you, your family and your precious little girl. I have been there with the reactions and not knowing. I do pray that she is well and home soon. God Bless you and your family. Daura Hamilton

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Tara January 18, 2013 at 3:16 pm

My heart hurts so much for you & your family! Little Jemma will be in our prayers.
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Aimee January 18, 2013 at 3:19 pm

You absolutely have my prayers!
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jayedee January 18, 2013 at 3:24 pm

my heart is absolutely broken for you! prayers, prayer and more prayers for your family!
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Sara January 18, 2013 at 3:29 pm

Praying hard for you. God is good all the time. One year ago my coworker went through nearly the same thing. Her toddler son had a pneumonia that was literally eating his lung, and she had a 6 week old at home. With lots of love and prayers and several weeks in the ICU, he came home a happy healthy boy. The doctors said he would lose half his lung function in one side, one month later he had resumed 100% of lung function in both sides. Truly a miracle! Keep strong, know that other mothers are praying and pulling for you!

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Tammy Northrup January 18, 2013 at 3:32 pm

As a mother of six and grandmother of two I had to keep stepping away as I was reading this. I was reading it while working and I couldn’t stop crying. I am so sorry for what you and your sweet baby are going through. I am praying that she will recover fully. There are no words to make it easier but please know you, Jemma and your family are in my families prayers.
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Janine January 18, 2013 at 3:34 pm

Oh My – keeping you all in my thoughts and prayers.

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Chelle January 18, 2013 at 3:34 pm

Honey, you are so strong for sharing this. Jemma is a FIGHTER–and one of the strongest fighters EVER. I’ve been following your story on BA–we love you guys so much! Praying and praying for Jemma <3 xoxo
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Kristie
Twitter:
January 18, 2013 at 3:35 pm

As a mom, my heart breaks for you. I will continue to pray for your little one and your family. I pray for God’s healing hand on Jemma, strength, courage and wisdom for you and your husband, and wisdom and discernment for the medical team caring for Jemma. My God hold all of you close during this time and may you be blessed in all that you do.
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Jill
Twitter:
January 18, 2013 at 3:40 pm

Prayers and good thoughts being sent your way. Hang in there. I hope your baby girl is back home soon.
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Brandy Nelson January 18, 2013 at 3:43 pm

Oh no, Stefany! I am so sorry you’re going through this…I am sitting here sobbing and praying my hardest for sweet little Jemma’s full and speedy recovery. Seeing your kids sick is painful, and I cannot imagine the fear, grief, and absolute helplessness you must be experiencing right now. Please know that you’re in our thoughts and prayers, and if you need anything at all, even if it’s just to scream or vent, MANY of us are happy to lend an ear and a shoulder to cry on. <3
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Jessica R. January 18, 2013 at 3:43 pm

Praying for all of you and wishing little Jenna an uneventful recovery!
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Crystal Wonitoy January 18, 2013 at 3:51 pm

Oh my goodness, I am so so sorry for everything that little Jemma has been through… she and your family are in my thoughts and prayers.

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anita anderson January 18, 2013 at 3:57 pm

Words cannot express what you have been going through. I can only imagine your pain. You have me in tears as well as I am also a mother. Know that you are resilent and so is your baby. Good sign is that she is getting better little by little. Your family is in my prayers. Let us know how she is doing.

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LaDonna Dennis January 18, 2013 at 4:00 pm

Keeping you and your family in my thoughts and prayers.

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Amy January 18, 2013 at 4:03 pm

Thinking about you and your family. Wishing a return to full health very, very soon for Jemma!
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Miranda January 18, 2013 at 4:03 pm

Sending thoughts and prayers your way. We went through a similar situation with my son when he was 11 months old. He is now a healthy 6 year old! Stay positive!

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Allie January 18, 2013 at 4:06 pm

My prayers are coming your way. You are living what we all dread, so we will band together in a big prayer circle for you and your little girl!

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debi affrunti January 18, 2013 at 4:06 pm

My prayers our with you Im so sorry I cant even imagine how you feel please keep up posted

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Lyuba January 18, 2013 at 4:06 pm

Oh my gosh! I am sitting here is tears and I can’t even imagine how you feel. I really hope that Jemma keeps getting better and better!
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Carol A January 18, 2013 at 4:09 pm

Your child and your family will be in my thoughts. There is nothing worse than watching your child go through this and the feelings of helplessness and despair. I, too, had watched my beautiful new born son fight RSV and did not leave the hospital the entire time. I would not allow nurses to perform any tasks beyond the medical. That is a mother’s responibility and privledge. Your daughter knows your love as proven by the physical responses to your voice. She is strong and she will fight to once again be with you whole and healthy. May your heart be lifted with each day that brings good news and may you find the strength to weather those that do not. We do not know each other but I feel the connection of our mother’s hearts.

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Heather January 18, 2013 at 4:10 pm

I am so sorry that you are going through this. Keeping your whole family in my thoughts.

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Suebob January 18, 2013 at 4:12 pm

Sending my best thoughts for your girl and you and your family. She’s strong and she’s getting better. Go, baby girl, go!
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Kimberlee Pitts January 18, 2013 at 4:19 pm

My heart just broke when I read you story. No parent should ever have to go through something like this. I will pray for you and your little angel. I am sure that my mother is up there in heaven watching out for me and will ask her to try to include your family.

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gorillabuns January 18, 2013 at 4:28 pm

I am so very sorry. Sending prayers and good thoughts she gets well quickly and you have your beautiful baby in your arms again.

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Ada Miller
Twitter:
January 18, 2013 at 4:38 pm

I am so very sorry & my heart is breaking for you all. I will keep you all in my thoughts and prayers. This is such a big eye opener that we never know what could happen to our babbies.

look forward to your updates & hope Jemma continues to improve. Big hugs to you<3

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Jayna January 18, 2013 at 4:45 pm

My heart is breaking for you… I wish your daughter the best, and I cannot even begin to imagine what you are going through. My heart and prayers go out to your family.

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tERRI rICKERT January 18, 2013 at 4:57 pm

I send my prayers and hugs, I can’t imagine what you are going through with a child.

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gina January 18, 2013 at 5:01 pm

Saying a prayer for your sweet little girl. May GOD, love and prayers help her with a speedy recovery and off those tubes and back in your arms.

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barbara remaly hart January 18, 2013 at 5:02 pm

Oh my, I am so sorry, no baby or parents should ever have to go through something like this!!! God Bless you & your husband. I will be praying for your gorgeous, & adorable Little Jemma. Continue to stay strong & positive <3 God's word says that He never gives us more than we can handle. Many of times I have thought OK, Lord I think I am at my limit, & things have gotten worst, but I survived it & have become a stronger in my faith & as a person. I have to say that this is a much harder situation than I have faced, so please do not think that I am trying to say it is easy. I don't know if I could have handled this without losing my mind & becoming deeply depressed. Hang in there <3

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Jill Perry January 18, 2013 at 5:14 pm

I just want you to know how much stronger you are than you think you are, to even be able to think clearly enough to share your story speaks volumes. Hopefully your next update will be filled with joy and progress, I am so very sorry and heartbroken for what you are going through.

With the utmost sincerity,
Jill Perry

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Jenn (MamaJ) January 18, 2013 at 5:42 pm

<3 you know Im praying !! (((gentle hugs)) for you both

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Bonnie January 18, 2013 at 5:44 pm

Prayers are headed your way.

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Eustacia Miliusus January 18, 2013 at 5:51 pm

I will pray for your family and your beautiful daughter Jemma.

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beth January 18, 2013 at 5:53 pm

Prayers to you & your family on this crazy journey. I hope your beautiful little lady gets better soon !!

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Ellen Christian January 18, 2013 at 5:58 pm

I am so sorry. I will pray for you both. I hope she feels 100% better soon.
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Denise (Greaves) Glenn January 18, 2013 at 5:58 pm

I am so sorry to read this. I will be praying for you, your family and especially Jemma!

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Tammy Greenbury January 18, 2013 at 5:59 pm

Prayers to you and your family.

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Sarah Lewis January 18, 2013 at 6:06 pm

Tons of prayers coming your way!!!
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MamaBreak January 18, 2013 at 6:07 pm

As I read your story, tears are streaming down my face. You are living probably all of us mom’s worst nightmares and my heart breaks for you! I am praying for Jemma and for you and your family!
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Katie Sexton January 18, 2013 at 6:11 pm

I am so sorry for what your baby has had to go through and what you as a mom has had to endure, we will be praying for your baby and your family

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Aubree Faunce January 18, 2013 at 6:11 pm

In my thoughts and prayers!!!Hope for a speedy recovery. I can’t imagine how hard this must be!!!

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donna anderson January 18, 2013 at 6:14 pm

i am so sorry to hear what you and your family are going thru.i will keep you in my prayers.god gives us strength we do not know we have when it comes to our children.just keep holding the little sweetie mommies arms are just where she wants to be !!!!!

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illy junus January 18, 2013 at 6:17 pm

I found a post in the facebook about your story. I’ll pray for you, your family and your beautiful daughter Jemma. Hang in there! Love and prayer for you

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Angie Andrews January 18, 2013 at 6:19 pm

My heart goes out to you and your precious little girl, what a terrible time for you all. You and your family will be in my thoughts and praying your little girl recovers soon.

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deidra dyson January 18, 2013 at 6:20 pm

you are in my thoughts and in my prayers. as i was reading your blog i got so emotional and even had to pause at times to wipes the tears streaming down my face. i can never imagine what you are going through at this time, no parent should ever have to hear that their child is sick. i will be thinking of you every day and saying a prayer for you and baby Jemma, xo

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Lori Birdsong January 18, 2013 at 6:23 pm

My heart goes out to you and your precious family and many prayers are being said for your angel Jemma. May God hold you all in his arms during this trying time and help heal that baby girl.

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Linda Bundrick January 18, 2013 at 6:26 pm

I am so sorry. I will pray for you , your family and your precious baby. God Bless.

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Katy January 18, 2013 at 6:29 pm

I am so sorry this is happening to you, I will pray for Jemma, you and your family, god bless.

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Cindy January 18, 2013 at 6:32 pm

I know what it’s like to have someone you love in the hospital struggling for the life. It’s the most terrifying moment you will ever experience. But I also know the power of the internet and how every morsel of good that comes your way will bolster you and give you strength. So I’m sending you love and hope to your precious baby and to your family.
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Charise
Twitter:
January 18, 2013 at 6:46 pm

I am so, so sorry to hear about this horrific journey you have been on! I just cannot imagine. I will be keeping your beautiful girl and your whole family in my thoughts and prayers. I’ll anxiously be awaiting a blog post with some good news!
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Jennifer January 18, 2013 at 6:55 pm

I am so sorry you have to go through this. I could not imagine. I could not even get through reading your pots without the tears coming. I pray that you remain strong and that your baby girl gets well. god Bless you and Your family.

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Allyson Hunter January 18, 2013 at 6:55 pm

Tears and prayers for all of you. I cannot imagine your pain and anguish as you wait for Jemma to get well again. May God send his angels to watch over her and guide her through all of this. I will keep Jemma, and the rest of you, in my prayers and thoughts…

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debbie January 18, 2013 at 6:56 pm

Sending Prayers for your baby girl and you and your family
God Bless

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patricia January 18, 2013 at 6:56 pm

I am so sorry to hear about your baby girl. I will pray for her and your family. I hope she makes a good recovery.
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Laurie - Steals and Deals for Kids January 18, 2013 at 7:22 pm

Hi Sarah….My heart hurts reading this. I just cannot imagine what you and your family are going through. I am praying and will pass this on to all my praying friends.

Lots of Love,

Laurie
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Maybelline January 18, 2013 at 7:22 pm

I’m so sorry for what your precious little girl is going through. I’ll be praying for her, for you and all your family.

Hugs,

Maybelline
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Dianne January 18, 2013 at 7:23 pm

Lord, God Almighty, I pray that you would wrap your loving, healing arms around this baby girl and comfort her family. Lord you are the only one that can heal this child and I pray that it is your will to do so. Lord please bring this family peace and fill them full of your holy spirit, that they will know you have everything under control. Lord, it’s so hard for us to understand when something like this happens to a little one…please give this family understanding, strength, and the perserverence that they will need to see this thing through. In Jesus’ name…Amen.

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Kathleen January 18, 2013 at 7:29 pm

Praying for your sweet baby girl!
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Erika Clarendom January 18, 2013 at 7:37 pm

I’m sending a ton of prayers your way. My little boy who is 3 months old tested positive for RSV when he was a month old. We dealt with the sleep apnea, long nights of him sleeping on my chest. Just that was scary in itself. I cant imagine the pains you are going through. I am praying for your you.

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Gina January 18, 2013 at 7:41 pm

I am sorry to hear about your daughter’s illness. My son was hospitalized at two weeks old with a flu virus for a week and I can’t imagine facing anything that you and your daughter have faced. I am praying that God does a supernatural healing on her body and that she is in better condition than before. I pray for you to get rest even while you stay at the hospital because I also didn’t leave my son’s side and I was completely exhausted when it was over. I will be praying throughout and solicit others to do so as well. May God bless you and your family through this process and may you be completely restored in the end.

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Reese Smith January 18, 2013 at 7:56 pm

I really really do hope that she gets better. I will be praying for you and your family.

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Ellen Shullaw January 18, 2013 at 8:02 pm

Your darling baby and your whole family is in my thoughts and prayers…Thanks for taking the time to let us know how things are going….

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sandi tzourellas January 18, 2013 at 8:06 pm

I will pray for your baby day and night, I have 100% faith that God will heal her and make her new again. Praying for all of you to have strength and courage and also receive all of the support that yall need during this difficult time. Rest in him. God is the answer to all of this just stand on your faith and on HIS word. Lots of love from Texas!

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Amy in KC January 18, 2013 at 8:12 pm

You are an amazing mom – you need to hear that. My very best wishes for a speedy recovery for your Jemma.

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Jen
Twitter:
January 18, 2013 at 8:18 pm

My son was on a ventilator for the first week of his life. I couldn’t even hold him until he was three days old. I will be praying for your sweet baby and your family. Be as strong as you can be no matter how hard it may seem.

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Keith O'Neal January 18, 2013 at 8:35 pm

After reading your posts, I am amazed at Jemma’s and your strength. You both are in my prayers. I know prayers are heard and answered. God be with you both. Love and prayers, Keith

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Holly January 18, 2013 at 8:58 pm

Thinking of you and jemma I am crying reading it please keep us posted. Praying for you xx

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Piper
Twitter:
January 18, 2013 at 8:58 pm

I’m so sorry :( it is such a helpless, terrifying feeling when your baby is sedated and on a ventilator–I knew I would see it (she had open heart surgery) and the first time I saw her was still such a shock {{hugs}} I am glad to hear Jemma’s numbers are improving–many thoughts and prayers to her and all of you as she continues to heal.

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Brenda January 18, 2013 at 9:15 pm

Just now finished reading your story. It is so heartbreaking,my heart goes out to you and Jemma, I really do believe that God is going to take real good care of her,God is a miracle worker. God has everything under conrtol. I will definietly will keep her and all the family in my prayers. Hang in there. All you have to do is have the faith. Take care and God Bless. Please keep me posted.

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Renee January 18, 2013 at 9:20 pm

You all are in our thoughts and prayers! I know exactly how you feel by walking into that room. My grandson had sezires right after he was borned . He was transfered to St.V in Indianapolis ! was there for 3 months. Completely Sedated. My Hert is with Jenna!

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Melissa Moreno January 18, 2013 at 9:23 pm

I am so sorry for your family, my heart is breaking for you after reading your post. You are all in my thought and prayers, especially Jemma.
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Our Country Road January 18, 2013 at 9:44 pm

I will be praying for you!! You are on the same floor as my friend’s grandbaby. Too much sadness there!! Praying for healing!
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Kim January 18, 2013 at 9:47 pm

Love and prayers for you and your family.

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Maryann January 18, 2013 at 9:53 pm

Prayers for precious Jemma and your family

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Kim January 18, 2013 at 9:55 pm

I can’t even imagine what you are going threw.. my daughter was born 6 weeks early and weighted 7pounds and 10 oz. the doctors said if I had carried her full term she would have weight 12- 13 pounds I was about to burst out the seams when she was born they took her from me and put her in NICU in Knoxville Tennessee and I was in Morristown Hamblem my room was right in front of the babies and I layed and cried every time I heard a baby cry. I begged to be released to go be with my baby.. So I talked the nurses into getting the dr. to release me in 2 days after a hard delivery by c- section.. I had infection and gran green set up and i still can’ not belive they signed the papers for me to leave as i packed they came in the room to tell me that the dr. changed his mind and decided he was gonna kept me. well I decided the dr.s had no say in this matter so when my husband got their I deceided I was escaping from the hospital so i got my stuff and left and wentstraight to knoxville to see my baby was I not ready to see her connected to so many wires and tubes i know when I walked in If my husband had not grabbed my arm I would have landed in the floor it scared me to death he had been their with her since she was addmitted so he knew what to expect but i was not listening to nobody because I was unaware what kind of condition my baby was in .. but looking around at all the other babies ( i knew I was so lucky my baby was really lucky to have been so big that her lungs were almost developed to where she was able to come home in 7 days but I was a very lucky parent to have a pretty much a healthly baby when I got home they told me she was down symdrom and she was prefect in every way we prayed thay she would not be and she is 23years old know with her own baby shes perfect nothing wrong she is healthy and so is her baby my grandson and I love them so much

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Gina H. January 18, 2013 at 10:01 pm

So sorry. I’m praying for complete healing for your precious baby girl & praying God will give you & your family strength. God bless you.

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Erikka January 18, 2013 at 10:19 pm

Will be praying for your little girl and your family!

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JoAnn January 18, 2013 at 10:26 pm

Praying for healing and strength for you all. I believe that as prayers go up God’s grace will flow down and envelop you and yours. God bless you and keep you as you navigate this intense situation.

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Jeanne Medina January 18, 2013 at 10:38 pm

My heart aches for you! I am praying!
Father God, in the name of your son Jesus Christ I pray for Jemma’s healing. I ask that you would align every cell in her body into accordance with Your perfect will. I ask that you divinely guide every health professional and caregiver that comes into contact with Jemma, and guard her against all harm. I ask that You Bless this family with Your Holy Peace that surpasses all human understanding. Thank you, in Jesus’ name! Amen.
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Bobbie
Twitter:
January 18, 2013 at 11:30 pm

I’m so terribly sorry you are going through this. I feel awful for poor little Jemma. She’s too little to have to deal with this much. I am praying for your family! xoxo

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Regina Sullivan January 18, 2013 at 11:31 pm

so sorry this has happened to your little girl and to your family….I’m praying for her
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Sallee Glickler January 18, 2013 at 11:48 pm

Sending good thoughts to your baby. At the very least, it sounds like she’s going in the right direction now.

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Lynda Abeyta January 19, 2013 at 12:10 am

We will be keeping Jemma in ours prayers and your whole family too. Hoping all goes well.
Lynda

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kim L January 19, 2013 at 12:42 am

I am in tears weeping for your precious baby! Praying so very hard!!!

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Brooke January 19, 2013 at 12:45 am

Oh Stephany, I am so sorry your baby girl, you and your family are going through this, I will be praying for you all.
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Sarah January 19, 2013 at 12:46 am

I have sent Reiki healing energy to your daughter and your whole family. Reiki is a Japanese energy healing modality loosely translating as Universal Light Energy. If there is someone nearby who practices Reiki I highly recommend getting an in person treatment, however distance and time are not obstacles in energy healing. Love Peace

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Karen Munro January 19, 2013 at 12:47 am

Jemma has alot of prayers and angels that can carry a message to God..whom I know loves her and your sweet family. Be strong..you can carry her home soon.

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Allison L. January 19, 2013 at 1:28 am

Praying for you, can’t even imagine what you all are going through. Will definitely keep you in my thoughts and prayers.

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Silvina January 19, 2013 at 1:37 am

Prayers for you and your family!! Only a mom knows what you are going through!!

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denise January 19, 2013 at 1:49 am

my prayers are with you and your precious baby. god bless.

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Gemma Balcomb January 19, 2013 at 3:44 am

Praying for you here in the UK, hope that she gets better very soon

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Dory Bomersbach January 19, 2013 at 5:30 am

My prayers are with you, your family and your sweet baby daughter. My God heal her and comfort your family through all of this.

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Michele January 19, 2013 at 6:00 am

I can not begin to imagine what you are going through–My prayers and healing thoughts are going to be flowing in your direction (all of you) constantly until all is well again.

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Kerrianne January 19, 2013 at 6:18 am

Sending prayers for sweet little Jemma. I know your heart is breaking, but don’t lose faith that she will eventually recover. My son was in the ICU for a long time as an infant, and on a ventilator, and things were touch and go for so long. I do feel your pain, but I believe in the power of prayer, and miracles do happen. Jemma is lucky to have you. Pray to the Blessed Mother (advice given to me when my son was ill – he is now recovered and thriving against all odds) because she knows what it is like to see her child suffer. May strength be yours, and may Jemma start recovering quickly. I will keep her and your family in my thoughts and prayers. <3

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Stephanie r January 19, 2013 at 8:30 am

I’m am so incredibly sorry for what you are going through. Know that you all are in my thoughts.

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crystal lane January 19, 2013 at 9:25 am

Prayers for your baby girl.I cant imagine what you are going through.My heart hurts for you.God bless your baby girl and send some healing.

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Abby Murphy January 19, 2013 at 9:29 am

My heart breaks for you. I cried as I read this. I’m looking at my healthy 2 yr old son and I can’t even fathom what you’re going through. I will definitely ask for prayers for you as well as pray myself. PLEASE let me know if I can do anything for you!
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Belinda January 19, 2013 at 9:54 am

My heart is breaking for you and your sweet girl! I just prayed that God works through the doctors to heal Jemma. I’m also praying for peace and strength for you and your family!

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Jayne Townsley January 19, 2013 at 10:04 am

I know your terror. And it sucks.

I will be praying for a great outcome for your entire family. I don’t know you, but I feel that I should tell you, “Much love to you all.” And that is heartfelt. “Much love to you all.”
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Jeannie Kratz January 19, 2013 at 10:21 am

Hello Stefany

You don’t know me. I am Rebekah Kersey’s mother.
I just wanted to let you know I have been praying for Jemma for the past week. I have also sent Jemma’s info to a prayer chain I belong to, so we can have many more people praying for her.
Many years ago, one of our daughters was in Children’s hospital for many weeks. The odds were definitely against her. We had literally thousands of people praying for her, and we received our miracle.
I pray you will receive yours also!

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tina m January 19, 2013 at 11:02 am

I can’t even imagine! My prayers are with you, your family and especially little Jemma!! God Bless!

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Mandee January 19, 2013 at 11:05 am

We are praying for your sweet baby girl.
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Kathleen Hunsicker January 19, 2013 at 11:10 am

Stefany,

It is very hard to sit by and just watch as doctors do what they feel best for your baby when all you want to do is pick them up and take them home. I’ve been through it and praise God my baby is now 33 years old but it still will bring tears to my eyes just thinking about it. My prayers are for Jemma as well for your whole family it is very hard on you all . God Bless you all!

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Mitzi January 19, 2013 at 11:51 am

My friend Angela, from Fluid Pudding shared this story on her FB page. I am thankful that she did. You definitely have my prayers for your sweet baby girl.

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Becky Ryan-Willis
Twitter:
January 19, 2013 at 12:04 pm

My heart is aching for what you have been through and what Jemma has had to endure! Your post choked me up as you must be so exhausted; so I am sending prayers for Jemma for healing, prayers for you for strength; and prayers for your family to get through this together. She is already a strong little girl! and is so blessed to have you and your family as support. Love to you all!
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lelaniedenso January 19, 2013 at 12:23 pm

I couldn’t even imagine what you are feeling right now…. I will pray for God to give your family strength to face this trial….
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Mary January 19, 2013 at 12:24 pm

My heart is breaking for you right now as I know how tough this has to be. I want you to know that I am praying for your little girl and I will have my prayer warriors also pray.

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Elizabeth Atalay January 19, 2013 at 12:25 pm

My prayers go out to you and Jemma! This is a mother’s worst nightmare and I wish her a smooth recovery.

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Julie Wood January 19, 2013 at 12:30 pm

I feel ashamed of myself and my little problems that I make a big deal over! I am crying right now after reading your story about your sweet little girl. I am telling you right now that I am praying for her. Please God help Jemma be healed, bring her back all better to her parents who love her so much!

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April Stephens January 19, 2013 at 12:38 pm

HUGS!!!!! I will be praying for all of you.

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Dawn
Twitter:
January 19, 2013 at 1:46 pm

My heart is aching for you. I know all to well what it is like to go through this as a parent and what got me through it was the prayers and comments of loved ones around me. We are praying with you.
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Millie Revelle
Twitter:
January 19, 2013 at 1:53 pm

My Dear Stefany <3 My heart just breaks for you <3 I just wish i was there right now to just hug you. I couldnt imagine goin thru that with my son when he was that age. You are a very strong lady to have done this and the help of Jesus Christ. There is so much to say to you but it hard to even type without tearing up on the key board. I will for sure have you and Jemma in my prayers that she is healed and will go on with a normal life. And pray that you will be blessed with a job when u get thru all of this.
xoxoxoxox's to you Stefany & Jemma
P.s. When i arrive at Church tomorrow i will have you an Jemma on the Prayer List <3 And May God Bless You As You Get Thru This. (Always read Phil 4;13 when u feel helpless)
<3

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Tanya @MommyGoggles
Twitter:
January 19, 2013 at 2:19 pm

My heart and prayers go out to you, Jemma and your family. I’ve been following your updates on Facebook and my heart is broken for you all. Sending tons of prayers!

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Penny Chupp January 19, 2013 at 2:49 pm

Hello, I just read your blog and cried how sad and scary with what you and your family are going thru I am definately praying for jemma and your family and know that that your family had alot of prayer warriors praying for your family .

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Emily January 19, 2013 at 2:51 pm

I just read your story and said a prayer for your precious Jemma. My own healthy 8 month old with big brown eyes is playing at my feet and I can’t imagine the pain you must be feeling to see your darling suffering like that. I really don’t even know what to say other than you’ll be on my heart and in my prayers.

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Erin January 19, 2013 at 3:08 pm

God bless you and your family! You don’t know me, but I have a little girl and I am praying for your little girl too!

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Ibana January 19, 2013 at 3:46 pm

Praying for your baby girl !

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april yedinak January 19, 2013 at 3:55 pm

I am praying for your baby.

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Lee Reese January 19, 2013 at 4:53 pm

Praying for your doll baby! God is with her,and you all.

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Loretta Bivona January 19, 2013 at 6:15 pm

I’m so sorry your baby is so ill. I’ll be praying for your baby and family.

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April Clements January 19, 2013 at 8:37 pm

I am praying for Jemma’s full healing and recovery, ffor peace and God’s touch for you and your family and his wisdom and guidance for the doctors and nurses. I pray that Jesus will take Jemma in his arms and hold her and you and your family through the healing process. I ask these things Jesus Precious Name . Amen

Thinking of you daily and walking by your side in this time of need Sis.
All my love,
APRIL

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Charissa January 19, 2013 at 8:51 pm

Praying for you, your family and Jemma! So heartbreaking!

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Annamarie Dodge January 20, 2013 at 7:33 am

I am praying for your baby and that God will guide the physicians hands to heal her…God bless you and your family during this trying time

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Lacey Crump January 20, 2013 at 9:51 am

I just cried, reading this. I have alittle girl about the same age as your Jemma, I couldn’t imagine what you are going through, your sweet daughter and family are in my thoughts and your sweet daughter

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Lacey Crump January 20, 2013 at 10:07 am

Sorry, I was so worked up, the last sentence is suppose to say: your sweet daughter and family are in my thoughts and prayers!

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Tracey Buckner January 20, 2013 at 1:00 pm

Just wanted to let you know that we are praying for you and your sweet girl Jemma and all your family. May you feel the comfort and touch of Jesus on your and your daughter!
Tracey

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Malia January 20, 2013 at 3:17 pm

Said a prayer for your little angel. This has brought me to tears. Hoping she gets better real soon. Sorry that you and your family are having to deal with this.
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Tracey January 20, 2013 at 3:40 pm

What city are you guys in? Praying for you all!

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Deborah Kerr January 20, 2013 at 5:39 pm

Dear God this is a child of yours,a daughter.Please lift her up in your arms and give her all the love this little angel deserves.Her family needs all your love to get them through what they are facing,they need strength and guidance .I ask this in Jesus name Amen.

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Paula January 20, 2013 at 7:13 pm

Sending all of our positive thoughts and energy. Hope your little girl is doing better. Keeping her and your family in our thoughts. Stay strong.
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Lynda Dwyer January 20, 2013 at 8:52 pm

I saw your story on facebook and have been trying to place your face because you look so familiar….we also go to All Saints and I realized that your family has sat right in front of us at 10:30 mass and your adorable little girl would smile and flirt with my kids. Your story is heartbreaking and I can’t even imagine what you are going thru. Just wanted you to know that you and your family are in our prayers. May God continue to watch over all of you and give you strength during this difficult time. I can’t wait to see all of you again at the 10:30 gym mass and that beautiful smile of your little girl.

Lynda Dwyer – All Saints

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Linda Finn January 20, 2013 at 8:54 pm

praying your little girl heals and that God would touch her small body and give her life and make her healthy . I am praying for your comfort through this whole ordeal.
Love in Jesus
Linda
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Alissa Apel January 21, 2013 at 8:49 am

Oh my goodness! I am thinking of you and your little Jemma! I feel so much for your family right now!

6 1/2 years ago my son had an ear infection that went into a staph infection in his neck. He couldn’t turn his neck. They didn’t know what it was. They talked about surgery, even wheeled him in to remove it, but again didn’t know what it was, so they opted not to remove it. They tried multiple antibiotics. Nothing was working. The infectious disease doctor was called and was in on his case. His white blood cell count was through the roof. Then when he got better, he had Rotovirus. He was throwing up all his antibiotics.

Then 4 years ago my other son got Meningitis. It felt like a repeat of the first child. Of course different, but lots of doctors, high white blood cell count, so on and so forth.

My nephew has Trisomy 18 and had to get put on a vent for jaw surgery. :(

Those three times were the hardest! I don’t know exactly what you are going through. I do know that it’s heart breaking.

All thoughts your way! Please Jemma get better ASAP. Your Mama needs you!
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Paige Love January 22, 2013 at 5:48 am

Praying for you & your baby girl…hang in there :)

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HeatherWilliams January 22, 2013 at 5:50 pm

I am sitting here bawling looking at my 11 month old. i can’t believe your pain. I WILL pray for Jemma and your family. Know that you are loved and are held in a large embrace.

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Tabitha January 22, 2013 at 8:08 pm

Strong prayers for your little girl! And for you and your families strength!

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Melissa January 22, 2013 at 9:48 pm

I am soo very sorry for you. I prayed from start to end and will continue praying everyday for your little one. I had a vent baby so I know how hard it is to see your child like that. Please knoe that we are all here for you and your family. Please keep us updated.

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Karen Scott January 25, 2013 at 10:48 am

Stefany…even though I don’t know you I will pray and pass your story. It hits home with me and my family big time. You are in great hands there. Feel free to contact me for comfort or support or I you are interested in knowing my daughters story. Hugs to you all.

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Terry Pittman January 28, 2013 at 5:03 pm

This is such a heartbreaking situation. I’m lost for words other than I’m so sorry you’re having to experience this! And your baby having to be so sick it just tears me apart to think of what you and your baby have been through! May God Bless you and carry you through this!

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Rebecca Harris January 29, 2013 at 11:07 pm

My heart goes out to you and your husband, I have a son that has Asthma and get pneumonia real quick and my heart breaks and scared out of my wits. I could only imagine what you are going through. I do know that we have a God that is in control and where the prayers go up the blessing will come down. Please keep me informed as in what is going on to report to my church friends and praying family members. I believe in the healing of our God.
Your sister in Christ,
Rebecca Harris
email
martyswife2012@gmail.com to keep me posted.

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Sarah De Diego (Journeys of The Zoo) April 1, 2013 at 8:03 pm

I am in a puddle of tears.

My triplets were born at 30 weeks and in the hospital for 6 and 8 weeks. My son Alexander never made it home…

My daughter got sepsis and was on three of the drugs you mentioned. We were hours away from losing her. Thankfully, she survived with no side-affects.

I am so happy that you have your faith and that Jemma has you. All of you are in my prayers. I am only an email away.

Besos, Sarah
Blogger at Journeys of The Zoo
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